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Young Onset Parkinson's


A common misconception about Parkinson's is that it only affects older people. Although more prevalent in people in their 60's and older, Parkinson's can affect adults of any age. It is estimated that nearly 1 in 5 people living with Parkinson's were diagnosed when they were still of working age (Access Economics Report 2007). This figure is probably under representative of people living with Young Onset Parkinson's (YOP) as many of these people are hidden in the community.

The challenges faced by people living with YOP will be different to those diagnosed of retirement age. Younger people are still working, travelling, developing relationships and for some people, wanting to start families of their own. For these people, a diagnosis of YOP throws many questions and uncertainties about the future.

Most younger people with a diagnosis of Parkinson's still remain active in employment, leisure activities and in the community. Support from family, friends, employers will impact greatly on this. The information relevant to people living with YOP will vary greatly as younger people engage in a variety of lifestyles their circumstances will differ significantly from one person to another.

For YOP the focus is not just about learning to live with Parkinson's, the focus is on living well with this condition (Fyffe 2010).


Supporting people with Young Onset Parkinson's (YOP)


There is a social group especially for people living with Young Onset Parkinson’s and their partners called Young At Park (Y@P). The group strives to provide a welcoming, friendly and relaxed environment for people to meet others, share information and provide support to each other.

The Y@P website aims to improve the connectedness between members by providing a message board, and connections to social media; as well as the latest information about Y@P events and other news items which are particularly relevant to younger people living with Parkinson’s.


Why not visit the Y@P website now:


There is a growing worldwide movement looking at improving support for people diagnosed with YOP. In the UK and USA there are now organisations specifically reaching out to YOP and in recent years there are also YOP conferences, chat sites, blogs and online forums.

Parkinson's Victoria is committed to supporting people living with YOP. In mid 2009, a nationwide project looking into providing support for YOP was commissioned and the 'Living with Young Onset Parkinson's' report was launched in Canberra to a parliamentary breakfast in March 2010. This report is now being used as a lobbying tool for improved funding and resources for YOP. It is being used by state-based Parkinson's organisations as a tool for developing appropriate support options to those living with YOP.

The following reports can be downloaded below:


Parkinson's Victoria is continuing to develop and implement resources to better inform and support people living with YOP. Below are some current YOP resources from both Australia and overseas.





The American Parkinson's Disease Association (APDA) in the USA has a Young Onset Parkinson's website dedicated to resources for people diagnosed with Parkinsons -

The Parkinson's Disease Society (UK) also has a dedicated page on their website for information and resources especially for younger people living with Parkinson's -


The APDA together with the National Parkinson's Foundation (USA) recently held their first Young Onset Conference . Several of the sessions have been made into webcasts which can be viewed by clicking on the following link below:

Chat forums
Parkinson's Forum UK
PD Junction
 *these are internationally based forums which are not associated with Parkinson's Victoria in any way
Support Groups

In Victoria the 'Young@Park' group is a group of people with YOP and their families who meet up socially every few months usually at a restaurant or pub. There is a group based in Melbourne and Geelong.

Visit the Young@Park webpage in this site for more information

Personal stories


Tracey and Jordan are mother and son who share their stories of living with Parkinson's with us. Tracey was diagnosed with Young Onset Parkinson's when she was in her 20's. Tracey's son Jordan was born after her diagnosis so he has always known his mum with Parkinson's.


Now Jordan is 17 years, both he and Tracey write about their challenges and insights into living with Parkinson's.

Read Tracey's story



"I had a lot questions which were not always answered because there were no answers. Why was I so lucky to have Parkinson's when it is associated with over 50's? What are the chances that my son Jordan could get it? What would my future be like? Unfortunately, there were no answers again because there is not enough information for young people who have Parkinson's"

Read Jordan's story

"I have never really found my mum having Parkinson's disease difficult to live with as I've grown up with it and I just don't worry about it. I put up with it and think of all the other people who are far worse off"













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