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Monash University calling for DBS patients and carers to participate in a survey

Are you planning to undergo Deep Brain Stimulation (DBS) for Parkinson’s? Do you provide care for someone planning to undergo DBS for Parkinson's?

 If you are, please consider participating in a research study currently being conducted by Monash University.

The aim of the study is to better understand the experience of having DBS for Parkinson's from the perspective of the individual and their carer.  The study will examine the procedure’s impact upon patient and carer quality of life and their relationship.  We are looking to recruit both prospective DBS patients and their primary carers.

What is involved:

  • Completing two sessions, one before surgery and one 9 months after surgery
  • Each session will take 1 to 2 hours and will include separate interviews with the patient and the carer, plus some additional questionnaires. 
  • You can complete the sessions at a time and a place convenient for you
  • Participation is completely voluntary
  • Each participant will be reimbursed $20 before surgery and $30 each after surgery.

Results from the study will assist in the development of clinical guidelines for DBS medical teams to maximise the health and wellbeing of DBS patients and carers.

If you would like more information or are interested in participating, please contact Cassandra Thomson on (03) 9902 9810 or cassandra.thomson@monash.edu

This study has been approved by the Monash University Human Research Ethics Committee – CF16/1888 - 2016000963

 

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