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Living with Parkinson’s

Once you have overcome your initial reaction to diagnosis, there can be various challenges throughout the journey with Parkinson’s. However most people diagnosed with Parkinson’s continue to live long and rewarding lives, even as the condition progresses.

Living With Parkinson’s

Information about how to live well with Parkinson’s.

Exercise is a very important part of helping to manage the symptoms of Parkinson’s. Second to medication, it is probably the most important thing you can do to stay well.

Parkinson’s affects individuals differently and varies according to how long a person has had the condition, response to treatment, side effects to medications and other pre-existing health issues.

Living with Parkinson’s can have an effect on many drivers, but it doesn’t necessarily mean that you will be stopped from driving.

Many people with Parkinson’s are working and will continue to work for a considerable amount of time. Some of the most emotional and critical issues facing people with Parkinson’s relate to work and financial security.

Whether you have Parkinson’s or care for someone with the condition, Parkinson’s may affect your relationships. This can happen at any stage throughout the progression of the condition. Relationships between partners or family members, including children and grandchildren, are those most likely to be affected.

The decision to disclose your diagnosis of Parkinson’s is a very personal one. You may find it relatively easy to talk about Parkinson’s, or you may be more private or find it hard to come up with the right words. There can be lots of factors to consider as to whom, when and how you disclose your Parkinson’s.

Australians like to travel and travelling when you are living with Parkinson’s can continue. Extra planning will ensure that people with Parkinson’s can manage well and enjoy their time away.

Parkinson’s is not a condition commonly associated with needing to be hospitalised. However, people with Parkinson’s may need to be admitted to hospital at some point, whether it is in relation to their condition or for another medical reason.

There is a large variety of mobility equipment and disability aids for everyday living available to help people with Parkinson's. Mobility and disability aids can help people to maintain independence in the activities that are most important to them.

Support For You

Information about support services, health education events and neurlogists to assist in making a positive impact in the lives of people living with Parkinson’s.

Support and information can make a significant and positive difference to the lives of people living with Parkinson’s, their family and carers. Parkinson’s Victoria provides a range of support services to assist in managing the condition and improving the quality of life.

Information For You

Personal stories and information about resources and publications in English and other languages, to assist people living with Parkinson’s feel more informed.

Parkinson’s Victoria provides a range of resources and publications that can assist people living with Parkinson’s, their families and carers to feel more informed about the condition. We are also committed to funding research that will provide life quality outcomes for people living with Parkinson’s and ultimately, find a cure.

Research

Information about Parkinson’s research studies and ways to participate, that aim to improve the quality of life for people living with Parkinson’s both today and tomorrow.

Developing a strong Australian research agenda is central to Parkinson’s Victoria’s mission. We are committed to supporting vital research that improves quality of life for people with the condition, and the search for a cure.

How To Get Involved

Information about the many ways that you can get involved with Parkinson’s Victoria and make a difference to people living with Parkinson’s.

There are many ways you can support Parkinson’s Victoria. We have many activities you can take part in, plus opportunities to volunteer. Choose a fun and rewarding activity that will help make a difference to people living with Parkinson’s.

Symptoms

Information about the potential symptoms of Parkinson’s and how they can affect a person living with Parkinson’s.

Parkinson’s is a progressive neurological condition, which is characterised by both motor (movement) and non-motor symptoms. A full list of symptoms is explained here.

Treatments and Professional Support

Information about medications, surgical options and professional support available for people living with Parkinson’s.

While there is currently not a cure for Parkinson's, there are a range of treatments that can help to manage the day-to-day symptoms.

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