Advocacy: 

Parkinson's costs Australia $6.8 billion each year.  25 people are diagnosed every day of the year. Yet the total recurrent funding for services and support received by state Parkinson's Associations in Australia totals $550,000: Approximately $10 per person per year.  Consequently there is a significant lack of services and support, particularly in regional areas.  This is manifestly inadequate. It needs to be addressed.  Download media release here

Support Parkinson's Australia's submission to the Carers 2020 Summit

You can help people with Parkinson’s through supporting an online 2020 Summit hosted by Carers Australia.  In particular, the section on assessing impact or the adoption of a Carers Impact Statement by the Department of Health & Ageing when making decisions about new policy decisions, benefit programs and listing new drugs on the PBS. The outcomes of this seminar will be presented to the Prime Minister for consideration during Carers Week in October.  To ensure this key recommendation becomes a top priority, therefore aiding in the listing of new therapies and devices for the treatment of Parkinsons Disease please go to: http://www.carers2020.com.au/assessing.php   and support this initiative.

New report highlights the need for improved services and support

A report, commissioned by Parkinson's Victoria, has been completed by eminent disability consultants Dr Chris Fyffe and Jeffrey McCubbery. The report focuses on the significant population of people with Parkinson's who are of working age, and the lack of government funded service planning and coordination.  People in this age group are not recognised by government, are under represented in service access, and are subsequently marginalised.  Click here for the full report

 

Key Facts on Parkinson's and the need for support: Click here

Executive Summary of the Parkinson's Access Economics Report.  Click here

Work Welfare Wills

Is a plain English web guide to legal issues around health and life changes. It was produced for use in Victoria only as some of the laws will be different in other states of Australia. Chronic illnesses bring about lifestyle changes.

This resource was designed by the Chronic Illness Alliance to help people with a chronic illness, their families and advisors, to make informed decisions about the future.

The link for work welfare wills is http://www.chronicillness.org.au

The link for the Chronic Illness Alliance is www.chronicillness.org.au