Take part in research
Parkinson’s research is ongoing and there are a number of projects currently taking place throughout Australia and internationally. These research projects vary in scope, area of interest and level of participant involvement.
Participating in Parkinson’s research is a unique way to develop further understanding of this neurological condition. Research is critical to improving the quality of life for people with Parkinson’s and ultimately, for finding a cure. People with Parkinson’s - and those without the condition - can participate in Parkinson’s-related research projects.
Australian Parkinson’s Disease Registry
The Australian Parkinson’s Disease Registry (APDR) is an initiative to establish and maintain a database of people with Parkinson’s in Australia.
Established in 2008 as the Victorian Parkinson’s Research Registry (VPRR), it has now expanded interstate to become the APDR.
It continues to provide a powerful platform for Parkinson’s research, with participation open to people with the condition.
For more information or to indicate your willingness to participate in the research registry:
- Email: firstname.lastname@example.org or email@example.com
- Call: (03) 9231 3190 (please leave a message and a contact phone number)
- Write to: Sarah McGregor, APDR Research Coordinator, St Vincent’s Hospital Melbourne, PO Box 2900, Fitzroy VIC 3065
Do you provide care for a family member or friend with Parkinson’s? If the answer is ‘yes’, please consider volunteering to participate in a research study conducted by Monash University.
Monash are seeking participants who are able to read and understand English in order to take part in a survey and/or face-to-face interview. They hope to understand your experiences as a carer, including how caring impacts your quality of life.
- Participants will be asked to complete a survey (approximatley 30 minutes)
- Participants will be asked if they would also like to participate in an optional interview (60-90 minutes)
- Your participation is fully VOLUNTARY
- You can complete the survey and interview at a convenient time and location of your choosing
To participate or to enquire about the study, please contact Narelle Warren at firstname.lastname@example.org
You can also access the survey online at: http://tinyurl.com/lejjm9a
Physical Activity in People with Parkinson's
This study aims to understand more about the experiences and thoughts of people with Parkinson’s towards their regular physical activity through 'focus group' discussions. This knowledge is needed so that health professionals can provide better advice and design better activities and exercise programs to suit the unique needs of people with Parkinson’s.
To participate, you will need to attend a ‘focus’ group. You are eligible to participate in this study if you have been diagnosed with Parkinson’s by a doctor, you can walk without the assistance of another person, and you live in the community.
You will be asked to attend one of three focus groups for approximately an hour with 8-10 other people living with Parkinson’s. Two of the focus groups will be conducted in Melbourne, and one in Shepparton.
Group one: for people diagnosed with Parkinson's before 55 who've had Parkinson’s for two or more years
Group two: for people diagnosed with Parkinson's after 55 who've had Parkinson’s for five or more years
Group three: people with Parkinson's who currently live in a rural setting in, or near Shepparton.
The project is led by a team at the Physiotherapy Department at the University of Melbourne. This study was approved by the University Ethics Committee HREC number 1442534.1
If you would like more information or you would like to participate in this study, please contact Associate Professor Jenny McGinley at the University of Melbourne by phone on 03 8344 4118, or email Dr Jenny McGinley at email@example.com