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Participation in Research

Sociological study of use of digital media

Oct. 24, 2018

A new Monash University research project will investigate how patients use the Internet and social media in their efforts to influence the development and availability of treatments in different health communities.

The Internet is an increasingly important domain for health, changing the way people experience health and illness. In healthcare, there is growing recognition of the role of patients in influencing research priorities and treatment practices.

The project aims to address a number of questions around health activism via social media, the role of socio-cultural factors on stakeholder influence and whether any policy or practical responses can be drawn from the study for the national benefit.

Members of the Parkinson’s community, particularly those who use social media as an advocacy tool, are welcome to take part in the anonymous survey

The survey takes about 10 minutes to complete. There is the option to volunteer for a follow-up interview by leaving a name and email details. If you elect to take this further step, a researcher will contact you and arrange an interview at a time that is convenient, the interview usually takes place over the telephone.

The survey is open now until the end of December 2018. Interviews will also take place within this time frame, although it is possible this may extend into early 2019 depending on the response.

For further information please contact Dr Allegra Schermuly, or see the project website.


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