Living with PSP, CBS or MSA
There are a number of conditions which look like Parkinson’s at first, but progress differently, and are actually a separate condition altogether.
Sometimes these conditions are referred to as “atypical Parkinson’s” or “Parkinson’s plus”. However, the way they progress and the way they affect people is very different to Parkinson’s.
Progressive Supranuclear Palsy (PSP) is a rare condition affecting parts of the brain that control walking, eye movements, balance, speech and swallowing.
- Progressive - means the symptoms get worse over time
- Supranuclear - refers to the part of the brain that is affected
- Palsy - means a weakness or paralysis in a part of the body
Currently there are no known treatments to cure PSP or ways to prevent it from occurring. Treatments, therapies and strategies are available to help people with PSP and their families and carers to make the most of living with the condition.
Other terms sometimes used to describe PSP are ‘Steele-Richardson-Olszewski syndrome’, ‘Richardson’s disease’, ‘Parkinson’s plus’, ‘PSP-parkinsonism’ (PSP-P) and ‘pure akinesia with gait freezing’.
Multiple System Atrophy (MSA) is a rare neurological (brain) condition caused by a gradual loss and shrinkage of brain cells. This loss of cells occurs in the parts of the brain that control movement, balance and automatic functions of the body such as bladder and blood pressure.
- Multiple - many (parts of the brain)
- System - the brain structures that control different functions
- Atrophy - cell shrinkage or damage
Treatments and therapies are available to help manage symptoms of MSA, however there is no cure or ways to prevent it from occurring or slow its progression.
Other terms sometimes used to describe MSA are ‘olivopontocerebellar atrophy’, ‘striatonigral degeneration’, ‘Parkinson’s plus’ and ‘Shy-Drager Syndrome’.
Cortico Basal Syndrome (CBS) is most commonly caused by a disease called Cortico Basal Degeneration (CBD), but "Syndrome" is the preferred term.
It is a rare neurological (brain) condition which involves a gradual loss of brain cells in the areas of the brain that look after movement and thinking. CBS (CBD) is a progressive condition meaning that symptoms worsen over time.
- Cortico Basal - refers to the parts of the brain affected. The cortex is the outer layer of the brain and the basal ganglia lies deeper in the brain.
Treatments and therapies are available to help manage symptoms of CBS, however there is no cure or ways to prevent it from occurring or slow its progression.
Support for you
PSP and Aytical Parkinson's Peer Support Group
Anyone living with PSP is welcome to attend Parkinson’s Victoria Peer Support Group meetings.
However, there is also a Peer Support Group that meets to specifically address the needs of those living with PSP and other Atypical Parkinson's conditions, as well as their family and carers.
The PSP Peer Support Group meetings offer an informal environment for information sharing and socialisation, as well as presentations by professionals.
Meetings are held at the Cheltenham Library, 12 Stanley Ave, Cheltenham from 10am on:
Thursday 6 June 2019
Thursday 1 August 2019
Thursday 3 October 2019
Thursday 5 December 2019
Managing Atypical Parkinson's Seminar
A Managing Atypical Parkinson's Seminar will be held on Melbourne on Friday 2 August 2019. Learn more.
For more information on each of these conditions, as well as further details about the Peer Support Group and Seminar:
- Phone the Parkinson’s Victoria Health Team on 1800 644 189
- Email: firstname.lastname@example.org
Treatments and Professional Support
Information about medications, surgical options and professional support available for people living with Parkinson’s
Information For You
Personal stories and information about resources and publications in English and other languages, to assist people living with Parkinson’s feel more informed.