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This is my smile!

Ester was diagnosed with Parkinson’s just over two years ago at 47. This year, Ester is an ambassador and together with her family, the face of A Walk in the Park 2016.

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“Don’t look so serious”, my mother in law said, “smile for the camera”. “This is my smile” I replied.

It’s fair to say that the camera and I are no longer friends.

I was diagnosed with Parkinson’s just over two years ago at 47.  The diagnosis took 30 minutes, quick and simple.   So many of what I thought were isolated health concerns, now had a name. I’d originally been diagnosed with Essential Tremors, but after taking medications that were not helping for 18 long months, I was grateful for a diagnosis and a way forward.   Many thought I was too young to have Parkinson’s.  “But what about Michael J Fox?” I would say, “the actor was diagnosed much younger than me”.

I’m a mum with three daughters and a husband, a beautiful home, and Ginger, the ever adorable poodle.  Slowly, Parkinson’s tightened its grip on me and I had no choice but to leave the job I loved to focus on my health.  Sometimes, I had so little energy I could not take Ginger for a walk or manage everyday household chores.  It was pretty tough.

Last year was my first A Walk in the Park and I was amazed to see so many people involved.  I felt less like I had Parkinson’s and more like I was part of one big family.

In May, I had Deep Brain Stimulation (DBS) surgery.  It wasn’t great to shave my hair off, and really, I needed DBS like a hole in the head!  But you know, apparently a hole in the head is exactly what I needed.  My only hope is that DBS does its job, so I can return to mine.

In the meantime, and a good many novels later (I’m a real James Paterson fan!) I look forward to A Walk in the Park in August.  I’m amazed that Fight Parkinson’s chose my family to be the ‘face of the campaign’ – it’s funny to see our faces everywhere!

If it weren’t for DBS, I doubt I would have had the energy to walk this year.  Instead, I’m more excited than ever to be walking and fundraising, with energy to spare.   Each day, I’m increasing the time I spend on my indoor bike….and each day I increase my positive outlook on the future.

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Please note: Fight Parkinson’s uses the phrase Parkinson’s rather than Parkinson’s Disease to reflect the community’s preference. Parkinson’s Disease is used only when necessary such as in medical, research or government contents, or in direct quotes.