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Take part in research

Parkinson’s research is ongoing and there are a number of projects currently taking place throughout Australia and internationally. These research projects vary in scope, area of interest and level of participant involvement.

Participating in Parkinson’s research is a unique way to develop further understanding of this neurological condition. Research is critical to improving the quality of life for people with Parkinson’s and ultimately, for finding a cure. People with Parkinson’s - and those without the condition - can participate in Parkinson’s-related research projects.

Carer survey

Do you provide care for a family member or friend with Parkinson’s? If the answer is ‘yes’, please consider volunteering to participate in a research study conducted by Monash University.

Monash are seeking participants who are able to read and understand English in order to take part in a survey and/or face-to-face interview. They hope to understand your experiences as a carer, including how caring impacts your quality of life.

  • Participants will be asked to complete a survey (approximatley 30 minutes)
  • Participants will be asked if they would also like to participate in an optional interview (60-90 minutes)
  • Your participation is fully VOLUNTARY
  • You can complete the survey and interview at a convenient time and location of your choosing

To participate or to enquire about the study, please contact Narelle Warren at

You can also access the survey online at:

Physical Activity in People with Parkinson's

This study aims to understand more about the experiences and thoughts of people with Parkinson’s towards their regular physical activity through 'focus group' discussions. This knowledge is needed so that health professionals can provide better advice and design better activities and exercise programs to suit the unique needs of people with Parkinson’s.

To participate, you will need to attend a ‘focus’ group. You are eligible to participate in this study if you have been diagnosed with Parkinson’s by a doctor, you can walk without the assistance of another person, and you live in the community.

What’s involved:
You will be asked to attend one of three focus groups for approximately an hour with 8-10 other people living with Parkinson’s. Two of the focus groups will be conducted in Melbourne, and one in Shepparton.

 Group one: for people diagnosed with Parkinson's before 55 who've had Parkinson’s for two or more years
 Group two: for people diagnosed with Parkinson's after 55 who've had Parkinson’s for five or more years
 Group three: people with Parkinson's who currently live in a rural setting in, or near Shepparton.

The project is led by a team at the Physiotherapy Department at the University of Melbourne. This study was approved by the University Ethics Committee HREC number 1442534.1

If you would like more information or you would like to participate in this study, please contact Associate Professor Jenny McGinley at the University of Melbourne by phone on 03 8344 4118, or email Dr Jenny McGinley at