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Parkinson's Community Seminar - Melton

Join us for an informative and friendly community seminar where we will provide a general overview of Parkinson's and the latest sympton management strategies.

There will be information about revelant Parkinsons's support and specialist services available in the area.

This will also provide an opportunity of us to re-launch a Parkinson's Peer Support Group to be held at the same location, each month if there is sufficient interest.

Thursday 13th November 2014

10.30am - 12.30pm

Large Group Room

Melton Community Health Centre

Cnr High & Yuille Streets

Melton Vic 3337

Cost: Free

Please contact Breanna on (03) 9581 8700 or email breanna@parkinsons-vic.org.au

For full details download flyer


 

THANKS FOR BEING A PART OF THE BIGGEST EVER

A WALK IN THE PARK

Parkinson’s Victoria sincerely thanks you for making A Walk in the Park 2014 such a successful event for the Parkinson’s community.

Over 3,200 participants travelled from across Victoria and gathered at Federation Square to walk under glorious spring skies to support and celebrate those living with Parkinson’s as well as remember and honour loved ones.

The sea of white T-shirts and purple balloons travelling from Fed Square along the banks of the Yarra River was a very special sight and contributed to generating awareness for Parkinson’s within the wider community.

We are grateful for your outstanding fundraising efforts as individuals and teams. To date, you have helped raise over $225,000, the highest ever for A Walk in the Park. Parkinson’s Victoria is committed to reinvesting these funds into providing additional services to support people living with Parkinson’s and increasing its investment in research to help find a cure.

Online fundraising for A Walk in the Park 2014 has now closed.  Please contact the Parkinson's Victoria office on (03) 9581 8700 should you wish to make a donation.  

Now’s the time to pencil in your diary next year’s Walk – Sunday 30 August 2015!

Thank you once again for participating in the biggest ever A Walk in the Park 2014.

 

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World Parkinson's Day 2014

Informative Lecture: ‘Help for Today, Hope for Tomorrow’

On Thursday 10th April 2014 Parkinson’s Victoria and the Florey Institute of Neuroscience and Mental Health hosted a public lecture to celebrate World Parkinson’s Day 2014. It proved to be a successful evening with excellent attendance and two highly informative lectures delivered by Professor Meg E. Morris and Professor Malcolm Horne.

Professor Morris’ slides can be found here Help for Today

A recording of Professor Horne’s lecture can be found here https://www.youtube.com/watch?v=VnuWfsjacuc&feature=youtu.be

Thank you to everyone who contributed to the success of this event.

 


 

Dance for Parkinson's

In January 2014 the 7:30 Report (ABC TV) recently aired an empowering story about living well with Parkinson's and how Tango dancing can improve social, mental, and physical outcomes.

Click on the following link to view this story http://www.abc.net.au/7.30/content/2013/s3931165.htm

 

Dance for Parkinson’s

Suitable for people at any stage of the condition, Dance for Parkinson’s is a creative movement class modelled after the Dance for PD® program developed in the US.

Dance for PD classes have moved from Hawthorn East to a new location in Camberwell. Contact Parkinson’s Victoria on 1800 644 189 for more details.

 


 

Opportunities for Participation

Carer Survey

Do you provide care for a family member or friend with Parkinson’s?

If YES, please consider volunteering to participate in a research study conducted by Monash University!

Monash are seeking participants who are able to read and understand English in order to take part in a survey and/or face-to-face interview.

They hope to understand your experiences as a carer, including how caring impacts on your quality of life.

* Participants will be asked to complete a survey (approx. 30 minutes)

* Participants will be asked if they would also like to participate in an optional interview (60-90 minutes)

* Your participation is fully VOLUNTARY

* You can complete the survey and interview at a convenient time and location of your choosing

To participate or to inquire about the study, please contact Narelle Warren at narelle.warren@monash.edu

You can also access the survey online at:http://tinyurl.com/lejjm9a

 

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Survey of Physical Activity in People with Parkinson's disease

This study will survey people with Parkinson’s disease to understand how active they are, and what factors might influence their activity levels. This knowledge is needed so that health professionals can provide better advice and design better activity and exercise programs that suit the unique needs of people with Parkinson’s.

The project is led by a team at the Physiotherapy Department at the University of Melbourne. This study was approved by the University Ethics Committee.

To participate, you need to complete a survey about how active you are, what activities you do, and your thoughts about being active. Your responses to the survey will be anonymous.

For further details, download the survey flyer

To complete the survey

To complete the survey online click here: http://www.surveygizmo.com/s3/1531915/

(Please note: you need to have access to an email account to complete the survey online)

 

If you would prefer to complete the survey on paper or by telephone, or to request more information, contact Dr Jenny McGinley at University of Melbourne on  03 8344 4118 or email at mcginley@unimelb.edu.au

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Volunteer opportunity – People with Parkinson’s

Deakin University (Burwood)

A number of study units in the Master of Clinical Exercise Physiology need volunteers with chronic disease or injury to undergo a clinical exercise assessment and exercise program. Consults will involve student clinicians under the supervision of qualified staff.

For further details download the flyer here, or contact the Clinical Exercise Learning Centre (CELC), School of Exercise and Nutrition Sciences on 9244 5442 to express your interest.

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Volunteer opportunity – Family members

Latrobe University

The Centre for Health Communication and Participation at La Trobe University is seeking participants for a research project investigating the role of family members in protecting adult patients from medical errors and adverse events during hospitalisation.

Eligible family members will be asked to participate in a 60-minute interview with a researcher in person or via telephone/Skype – whichever is convenient for the participant. During the interview, participants will be asked about their role during their relative’s recent hospitalisation, any concerns they had about the hospital care, and how these concerns were managed.

For further details download the flyer here, or contact the researcher Bronwen Merner on 03 9479 5327 or via email b.merner@latrobe.edu.a

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Stem Cell Tourism Research Project

Researchers at Monash University are looking for volunteers to take part in their study High hopes, high risk? A sociological study of stem cell tourism.

The project involves in-depth phone interviews with patients or carers who have travelled overseas for stem-cell treatment, and 20 with people who have considered travelling and decided not to.

Click here for the project flyer or visit the project website for more information.

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Curtin University: Attitudes to seeking psychological help in Parkinson's Disease

Researchers from the School of Psychology and Speech Pathology from Curtin University in Perth are currently exploring attitudes to seeking psychological help among people with Parkinson's.

PhD student Lakkhina Troeung along with Dr Natalie Gasson and Dr Sarah Egan would like to ask for your assistance in completing a 30-minute online survey investigating factors that may or may not influence your decision to seek psychological treatment (should you ever need it). 

Any person with Parkinson's may complete the survey.  The survey is completely anonymous and no personal identification details will be collected.  While completing the survey may have no direct benefit to you, the team at Curtin University hope that you will take a little time to fill in your answers in order to help them learn a bit more about psychological problems in Parkinson's Disease and how to best help people who might have them.

For more information about the study and to access the questionnaire, please visit http://psych.curtin.edu.au/research/phd/ltroeung.cfm.

Click here to find out more about these or any other opportunities to participate in Parkinson's research.

 


 

Parkinson's Victoria - 'A message from Jennifer'

One of the priorities of Parkinson's Victoria is to raise funds to help increase support services and research. In order to do this, we need to raise awareness, especially amongst those who are most able to help. We were recently very fortunate to partner with DDB Group Melbourne, a creative agency, who were kind enough to lend their expertise and resources.

The result was a direct mail campaign. We handpicked 30 recipients from selected high profile Australian businesses to receive a simple, plain package in the post with a personalised DVD inside.

On the DVD is a personal message from Jennifer, a brave woman living with Parkinson's Disease, getting ready to go out. She strains and struggles against the condition to get up and going. She then writes a name, the direct mail recipient's name, on an envelope and leaves to deliver it.

The simple task of getting ready is draining for Jennifer. Watching you're not sure why she's striving to get out of the house.

It's revealed at the end of the film that Jennifer was making her way to the recipient's front door. And the film is a plea for help - for donations.

Share your comments about this video on the Parkinson's Victoria Facebook page parkinsonsvic

Parkinson’s Victoria gratefully acknowledges the support of the following who have generously donated their time and expertise to create

“A message from Jennifer”

Creative Agency:  DDB Group/Rapp Melbourne
Production Company:  Fiction
Post Production: Iloura and Sight & Sound
Sound Mix:  Risk Sound
Music Supervision: Level Two Music
Music Track:  ‘Indian Summer’ by Jonsi & Alex c/o Universal Music Publishing Group Pty Ltd, Kobalt Music Publishing Australia Pty Ltd, EMI Music Australia.

* The video featured shows the name and address of a fictitious person, Martin Wills, for illustration purposes and to protect the real recipients' privacy.


Signpost Spring 2014 now available

 

Signpost is the Parkinson's Victoria quarterly magazine. It is available online and a free paper copy is sent to all Parkinson's Victoria members (click here to join Parkinson's Victoria)

Read Signpost Spring 2014 here


Featured Resource

KEEP MOVING!

An exercise guide for people living with Parkinson’s

This DVD, which can be watched in the comfort and privacy of your own home, provides practical exercises and tips to address some of the mobility and physical challenges of living with Parkinson’s. The exercises, which include a brief Tai Chi program, are underpinned by expert advice from a Movement Disorder physiotherapist.  To order a copy call Parkinson's Victoria on 1800 644 189 or complete a Resource Order Form Resource Order Form

 

Parkinson’s Diary

The Day by Day with Parkinson’s diary is designed to provide people with Parkinson’s and their carers a ‘one-stop shop’ record book where one is able to gain up-to-date information about the disease.

To find out more or to order a copy of the 2013 diary, visit http://www.parkinsonsdaybyday.net/

In other news...

 

Parkinson's Information now available in Hindi

An Understanding Parkinson's brochure plus 4 information Help Sheets and a poster can now be downloaded free in Hindi.

Visit the language page of this website to view the Hindi resources plus information sheets in 10 other community languages.

Sign the Global Parkinson's Pledge ... and show your support for improved Parkinson's funding and support

Raise the voice of the Parkinson's community by adding your name to the Global Parkinson's Pledge. Launched at the recent World Parkinson's Congress in 2010, the Global Parkinson's Pledge seeks 1 million signatures to give a clear, strong message to governments, health agencies of the United Nations system, and patient-oriented non-governmental organizations (NGOs) throughout the world to improve resources, education and investment into Parkinson's. Visit www.parkinsonspledge.org to show your support to the Global Parkinson's Pledge The Global Parkinson's Pledge was launched at the 2010 World Parkinson Congress (WPC). The next WPC will be held in 2013 in Montreal and is the largest international gathering of the Parkinson's community, bringing together people living with Parkinson's, their families, health professionals and researchers to share the latest ideas and knowledge about Parkinson's. Learn more by watching this video - WPC 2013 video

Free Parkinson's manual for GP's

Parkinson's Disease: A General Practice Approach (2nd Edition), an excellent education resource for GP's is available FREE from the local GP Division or from Parkinson's Victoria by completing this order form GP Manual Order form and returning it to Parkinson's Victoria.

Parkinson's Victoria has moved office

In June 2011, Parkinson's Victoria moved to new, larger premises with better access to public transport and parking. Our new street address is: 8b Park Road, Cheltenham, 3192. Our mailing address is: PO BOX 2606, Cheltenham, VIC, 3192.

Please note our new phone number is: (03) 9581 8700 and Fax: (03) 9583 9952 (The Australia wide freecall number remains the same: 1800 644 189)

Curious about stem cell treatments?

There is a great new website www.closerlookatstemcells.org that provides information about the benefits and risks of stem cell therapies.

 
 

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