
All
members of the Parkinson's community are encouraged
to attend - people living with Parkinson's, their
families, neurologists, allied health professionals,
nurses, researchers, students and anyone with an interest
in Parkinson's.
Download
the
Program
Brochure and Registration form
 |
On
World Parkinson's Day, Wednesday 11 April,
we lit up Melbourne's skyline in support
of
people living with Parkinson's
The
spectacular, cutting-edge geodesic dome roof
of AAMI Park Stadium in Batman
Avenue was illuminated with 1,544 green LED lights
as dusk set over the city.
Think that's a lot of lights? Well for
each single bulb, there are more than twelve
Victorians living with the condition - day in,
day out.
With
the twinkling and sparkling of every light,
consider the awareness and optimism they represent. |
Parkinson's Live Webcast
Rural Health Education Foundation Broadcast
At 8.00pm on Tuesday 22 May the Rural Health Education Foundation will run a live webcast and Satellite TV Broadcast 'Parkinson's: The Latest Approaches'.
Dr Norman Swan will chair a leading panel, discussin the latest advances in diagnosis, treatment and ongoing management of Parkinson's disease.
The webcast can be viewed online at www.rhef.com.au or download the Parkinson's: The Latest Approaches flyer here to learn more.
New Research Opportunities
Essence Project: The impact of a mindfulness-based lifestyle program for Parkinson's Disease
The Essence Program is a 6-week mindfulness and lifestyle course developed by Dr Craig Hassed from Monash University.
The study aims to find out if this program has any impact on Parkinson's related function, health behaviours, mental health and self-empowerment.
Participants are required to attend a weekly 90 minute group session which will be run on Tuesday nights between 6pm and 8pm, beginning in May.
For more information or to express an interest in participating, contact the Health Team at Parkinson's Victoria on (03) 9581 8700.
Have
you had a stroke or been diagnosed with Parkinson's
disease?
Common
conditions associated with ageing, including stroke
and Parkinson's disease, affect an individual's health,
functioning and social participation. Social, cultural,
economic and geographic factors influence how people
adjust to life after a stroke or Parkinson's disease
diagnosis. This project seeks to explore the understandings
and experiences of people who have experienced one
of these conditions; it also examines what factors
might impact upon individual and family adjustment,
and how and whether this changes over time.
Click here to find out more about these or any other opportunities to participate in Parkinson's research.
Market
Research
Getting
to know you
Over
coming months, Parkinson's Victoria will be undertaking
a series of research project's to understand how we
can enhance and develop our support programs for the
Parkinson's community.
The
research to be undertaken will include face-to-face/
phone interviews and an online survey. To begin with,
we are currently seeking volunteers who would like
to share their Parkinson's story and experiences via
a 45 minute interview.
Your
participation would be enormously valuable as we search
for ways to improve our service and outcomes for those
diagnosed with Parkinson's.
Participant
information and feedback will remain confidential.
Research results and recommendations will be shared
with participants and our members later in the year.
If
you would like to participate in this important research
please contact John Williams at Disegno Group:
(03) 9690 0905, who will be very happy to
speak with you personally.
Special
Seminar Event: Meet the Experts
Practical Advice from National and International Rehabilitation
Experts on Physical Activity, Exercise and Lifestyle
For Living Well with Parkinson's.
Sunday
20 May 2012, 11am to 3pm, Hemisphere Convention Centre,
South Road, Moorabbin
On
Sunday 20 May, the most exciting workshop will be
run for people with Parkinson's and their partners.
Seven world class rehabilitation experts will be sharing
their knowledge about physical activity, exercise
and lifestyle for living well with Parkinson's. The
event will include hands-on activities and demonstrations.
The
number of seats are limited. There will be a maximum
of 40 seats for people with Parkinson's and 40 seats
for carers or family members. There is a $15 fee per
head to cover lunches and afternoon tea. If you are
on a pension, it will be $15 per couple.
Download
the
Meet
the Experts flyer to learn more about this event.
*
This event has been funded by the Colin and Sheila
Marshall trust
PLEASE NOTE: THIS EVENT IS NOW FULLY BOOKED OUT
Medication
Update
Recent
changes to the presentation of Sinemet and Sinemet
CR tablets
Parkinson's
Victoria has been made aware of some changes to the
presentation of the Sinemet, and the controlled release
form of the tablet, Sinemet CR.
The
most significant alteration is that this tablet will
no longer be scored and cannot be safely broken in
half. People who use ½ Sinemet and Sinemet
CR tablets as part of their medication regime will
need to seek advice from their neurologist or general
practitioner. Other changes to the Sinment CR tablet
is the medication will now be purple and will no longer
carry the letters MSD, or be labelled Sinemet CR.
If
consumers wish to provide some feedback in relation
to this the MSD consumer number is 1800 818 553
Read
the consumer information leaflets -
Sinemet
presentation change
Sinemet
CR presentation change
Michael
J Fox interview
Channel
7 Sunday Night program recently featured an interview
with Michael J Fox. If you missed it, you can watch
it by clicking on the link below.
Michael
J Fox interview on the Sunday Night program
Parkinson's
in the media
Parkinson's
Nurse Specialists curbing disability and depression
Parkinson's
nurse specialists significantly reduce the physical
and psychological burden encountered by Victorians
living with a common, chronic brain disorder and their
carers, according to landmark research to be released
at a national nursing conference.
Read
the official
Media
Release here
Also
in the media is a report stating that unless funding
is provided for Parkinson's Nurses, there will be
an influx of people living with Parkinson's entering
aged care facilities. Read the full article 'Parkinson's
patients to swamp homes'.
Signpost
Autumn 2012 now available
| Signpost
is the Parkinson's Victoria quarterly magazine.
It is available online and a free paper copy
is sent to all Parkinson's Victoria members
( click
here to join Parkinson's Victoria)
The
Autumn 2012 edition features articles on upcoming
education and fundraising events, a tribute
to Sir Zelman Cowen, new initiatives, symptom
management advice, information for carers, as
well as tips for improving health and wellbeing.
Plus there is plenty more...
Read
Signpost
Autumn 2012 here |
|
Parkinson's
Victoria would like to hear your thoughts about
the
Signpost
magazine

|
Featured
Resource

|
New
book - Living and Laughing with Parkinson's
by Anne Atkin
Living
and Laughing with Parkinson's is not the standard
clinical text book on Parkinson's.
This
book, written by a lady living with Parkinson's,
provides readers with an insight into this condition
by focusing on day to day examples - delivered
with a touch of humour - of a personal perspective
of life with Parkinson's.
Easy
to read, full of pictures and plenty of warmth,
this book is a must read!
Available
directly from Anne Atkin via her website - Visit
AnneAtkinArt or through Parkinson's Victoria
Cost:
$25 plus postage |
Day
by Day Parkinson's Diary 2012 now available
An
Australian resource specifically designed to provide
people with Parkinson's and their carers a 'one-stop
shop' record book where one is able to gain up-to-date
information about the disease.
Visit
the
Parkinsons
Day by Day website for more information
In
other news....
| Parkinson's
Information now available in Hindi |
|
An
Understanding Parkinson's brochure plus 4 information
Help Sheets and a poster can now be downloaded
free in Hindi.
Visit
the language
page of this website to view the Hindi resources
plus information sheets in 10 other community
languages.
|
| Tai
Chi and Parkinson's group |
| Thursdays
starting 23rd February at Oakleigh Rehabilitation
Centre. Beginners and advanced classes available.
Cuppa and chat included. Phone 9568 0466 for
more information.
|
| Sign
the Global Parkinson's Pledge ... and show your
support for improved Parkinson's funding and support
|
| Raise
the voice of the Parkinson's community by adding
your name to the Global Parkinson's Pledge.
Launched at the recent World Parkinson's Congress
in 2010, the Global Parkinson's Pledge seeks
1 million signatures to give a clear, strong
message to governments, health agencies of the
United Nations system, and patient-oriented
non-governmental organizations (NGOs) throughout
the world to improve resources, education and
investment into Parkinson's.
Visit
www.parkinsonspledge.org
to show your support to the Global Parkinson's
Pledge
The
Global Parkinson's Pledge was launched at the
2010 World Parkinson Congress (WPC). The next
WPC will be held in 2013 in Montreal and is
the largest international gathering of the Parkinson's
community, bringing together people living with
Parkinson's, their families, health professionals
and researchers to share the latest ideas and
knowledge about Parkinson's.
Learn
more by watching this video - WPC
2013 video |
| Free
Parkinson's manual for GP's |
| Parkinson's
Disease: A General Practice Approach (2nd Edition),
an excellent education resource for GP's is
available FREE from the local GP Division or
from Parkinson's Victoria by completing this
order form
GP
Manual Order form and returning it to Parkinson's
Victoria |
| Parkinson's
Victoria has moved office |
In
June 2011, Parkinson's Victoria moved to new,
larger premises with better access to public
transport and parking.
Our
new street address is: 8b Park Road, Cheltenham,
3192. Our mailing address is: PO BOX 2606, Cheltenham,
VIC, 3192.
Please
note our new phone number is: (03) 9581 8700
and Fax: (03) 9583 9952 (The Australia wide
freecall number remains the same: 1800 644 189)
|
| All
Parties Commit to a National Disability Insurance
Scheme |
All
three major political parties have confirmed
they will commit to a major reform of the disability
sector in their next term if elected, including
supporting a National Disability Insurance Scheme.
Visit
the EveryAustralianCounts
website to learn more about the initiative |
| Curious
about stem cell treatments? |
| There
is a great new website www.closerlookatstemcells.org
that provides information about the benefits
and risks of stem cell therapies. |
|