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Read the latest Signpost magazine

Read the 2010/2011

Annual Report

 

All members of the Parkinson's community are encouraged to attend - people living with Parkinson's, their families, neurologists, allied health professionals, nurses, researchers, students and anyone with an interest in Parkinson's.

Download the Program Brochure and Registration form


On World Parkinson's Day, Wednesday 11 April,

we lit up Melbourne's skyline in support of

people living with Parkinson's

The spectacular, cutting-edge geodesic dome roof of AAMI Park Stadium in Batman Avenue was illuminated with 1,544 green LED lights as dusk set over the city.  Think that's a lot of lights?  Well for each single bulb, there are more than twelve Victorians living with the condition - day in, day out.

With the twinkling and sparkling of every light, consider the awareness and optimism they represent.


Parkinson's Live Webcast

Rural Health Education Foundation Broadcast

 

At 8.00pm on Tuesday 22 May the Rural Health Education Foundation will run a live webcast and Satellite TV Broadcast 'Parkinson's: The Latest Approaches'.

Dr Norman Swan will chair a leading panel, discussin the latest advances in diagnosis, treatment and ongoing management of Parkinson's disease.

The webcast can be viewed online at www.rhef.com.au or download the Parkinson's: The Latest Approaches flyer here to learn more.


New Research Opportunities

Essence Project: The impact of a mindfulness-based lifestyle program for Parkinson's Disease

 

The Essence Program is a 6-week mindfulness and lifestyle course developed by Dr Craig Hassed from Monash University.

The study aims to find out if this program has any impact on Parkinson's related function, health behaviours, mental health and self-empowerment.

Participants are required to attend a weekly 90 minute group session which will be run on Tuesday nights between 6pm and 8pm, beginning in May.

For more information or to express an interest in participating, contact the Health Team at Parkinson's Victoria on (03) 9581 8700.

 

Have you had a stroke or been diagnosed with Parkinson's disease?

 

Common conditions associated with ageing, including stroke and Parkinson's disease, affect an individual's health, functioning and social participation. Social, cultural, economic and geographic factors influence how people adjust to life after a stroke or Parkinson's disease diagnosis. This project seeks to explore the understandings and experiences of people who have experienced one of these conditions; it also examines what factors might impact upon individual and family adjustment, and how and whether this changes over time.

Click here to find out more about these or any other opportunities to participate in Parkinson's research.


Market Research

Getting to know you

 

Over coming months, Parkinson's Victoria will be undertaking a series of research project's to understand how we can enhance and develop our support programs for the Parkinson's community.

 

The research to be undertaken will include face-to-face/ phone interviews and an online survey. To begin with, we are currently seeking volunteers who would like to share their Parkinson's story and experiences via a 45 minute interview.

 

Your participation would be enormously valuable as we search for ways to improve our service and outcomes for those diagnosed with Parkinson's.

 

Participant information and feedback will remain confidential. Research results and recommendations will be shared with participants and our members later in the year.

If you would like to participate in this important research please contact John Williams at Disegno Group: (03) 9690 0905, who will be very happy to speak with you personally.


Special Seminar Event: Meet the Experts

Practical Advice from National and International Rehabilitation Experts on Physical Activity, Exercise and Lifestyle For Living Well with Parkinson's.

Sunday 20 May 2012, 11am to 3pm, Hemisphere Convention Centre, South Road, Moorabbin

 

On Sunday 20 May, the most exciting workshop will be run for people with Parkinson's and their partners. Seven world class rehabilitation experts will be sharing their knowledge about physical activity, exercise and lifestyle for living well with Parkinson's. The event will include hands-on activities and demonstrations.

The number of seats are limited. There will be a maximum of 40 seats for people with Parkinson's and 40 seats for carers or family members. There is a $15 fee per head to cover lunches and afternoon tea. If you are on a pension, it will be $15 per couple.

Download the Meet the Experts flyer to learn more about this event.

* This event has been funded by the Colin and Sheila Marshall trust

PLEASE NOTE:  THIS EVENT IS NOW FULLY BOOKED OUT


Medication Update

Recent changes to the presentation of Sinemet and Sinemet CR tablets

Parkinson's Victoria has been made aware of some changes to the presentation of the Sinemet, and the controlled release form of  the tablet, Sinemet CR.

The most significant alteration is that this tablet will no longer be scored and cannot be safely broken in half. People who use ½ Sinemet and Sinemet CR tablets as part of their medication regime will need to seek advice from their neurologist or general practitioner. Other changes to the Sinment CR tablet is the medication will now be purple and will no longer carry the letters MSD, or be labelled Sinemet CR.

 

If consumers wish to provide some feedback in relation to this the MSD consumer number is 1800 818 553

Read the consumer information leaflets - Sinemet presentation change    Sinemet CR presentation change


Michael J Fox interview

Channel 7 Sunday Night program recently featured an interview with Michael J Fox. If you missed it, you can watch it by clicking on the link below.

Michael J Fox interview on the Sunday Night program


Parkinson's in the media

Parkinson's Nurse Specialists curbing disability and depression

Parkinson's nurse specialists significantly reduce the physical and psychological burden encountered by Victorians living with a common, chronic brain disorder and their carers, according to landmark research to be released at a national nursing conference.

Read the official Media Release here

Also in the media is a report stating that unless funding is provided for Parkinson's Nurses, there will be an influx of people living with Parkinson's entering aged care facilities. Read the full article 'Parkinson's patients to swamp homes'.


Signpost Autumn 2012 now available

Signpost is the Parkinson's Victoria quarterly magazine. It is available online and a free paper copy is sent to all Parkinson's Victoria members (click here to join Parkinson's Victoria)

The Autumn 2012 edition features articles on upcoming education and fundraising events, a tribute to Sir Zelman Cowen, new initiatives, symptom management advice, information for carers, as well as tips for improving health and wellbeing. Plus there is plenty more...

Read Signpost Autumn 2012 here

 

Parkinson's Victoria would like to hear your thoughts about the

Signpost magazine


Featured Resource

 

New book - Living and Laughing with Parkinson's by Anne Atkin

Living and Laughing with Parkinson's is not the standard clinical text book on Parkinson's.

This book, written by a lady living with Parkinson's, provides readers with an insight into this condition by focusing on day to day examples - delivered with a touch of humour - of a personal perspective of life with Parkinson's.

Easy to read, full of pictures and plenty of warmth, this book is a must read!

Available directly from Anne Atkin via her website - Visit AnneAtkinArt or through Parkinson's Victoria

Cost: $25 plus postage

Day by Day Parkinson's Diary 2012 now available

An Australian resource specifically designed to provide people with Parkinson's and their carers a 'one-stop shop' record book where one is able to gain up-to-date information about the disease.

Visit the Parkinsons Day by Day website for more information


In other news....

Parkinson's Information now available in Hindi

An Understanding Parkinson's brochure plus 4 information Help Sheets and a poster can now be downloaded free in Hindi.

Visit the language page of this website to view the Hindi resources plus information sheets in 10 other community languages.

Tai Chi and Parkinson's group

Thursdays starting 23rd February at Oakleigh Rehabilitation Centre. Beginners and advanced classes available. Cuppa and chat included. Phone 9568 0466 for more information.

Sign the Global Parkinson's Pledge ... and show your support for improved Parkinson's funding and support

Raise the voice of the Parkinson's community by adding your name to the Global Parkinson's Pledge. Launched at the recent World Parkinson's Congress in 2010, the Global Parkinson's Pledge seeks 1 million signatures to give a clear, strong message to governments, health agencies of the United Nations system, and patient-oriented non-governmental organizations (NGOs) throughout the world to improve resources, education and investment into Parkinson's.

Visit www.parkinsonspledge.org to show your support to the Global Parkinson's Pledge

The Global Parkinson's Pledge was launched at the 2010 World Parkinson Congress (WPC). The next WPC will be held in 2013 in Montreal and is the largest international gathering of the Parkinson's community, bringing together people living with Parkinson's, their families, health professionals and researchers to share the latest ideas and knowledge about Parkinson's.

Learn more by watching this video - WPC 2013 video

Free Parkinson's manual for GP's

Parkinson's Disease: A General Practice Approach (2nd Edition), an excellent education resource for GP's is available FREE from the local GP Division or from Parkinson's Victoria by completing this order form GP Manual Order form and returning it to Parkinson's Victoria

Parkinson's Victoria has moved office

In June 2011, Parkinson's Victoria moved to new, larger premises with better access to public transport and parking.

Our new street address is: 8b Park Road, Cheltenham, 3192. Our mailing address is: PO BOX 2606, Cheltenham, VIC, 3192.

Please note our new phone number is: (03) 9581 8700 and Fax: (03) 9583 9952 (The Australia wide freecall number remains the same: 1800 644 189)

All Parties Commit to a National Disability Insurance Scheme

All three major political parties have confirmed they will commit to a major reform of the disability sector in their next term if elected, including supporting a National Disability Insurance Scheme.

Visit the EveryAustralianCounts website to learn more about the initiative

Curious about stem cell treatments?

There is a great new website www.closerlookatstemcells.org that provides information about the benefits and risks of stem cell therapies.

 
 

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